There will be food available to purchase for those would like to have lunch after the run. There will also be other vendors set up for shopping. Even if you don't want to run or walk you may come enjoy the vendors and show your support of children with heart defects.
Can’t make it to the event? Virtual runners are welcome! Please make arrangements to get your t-shirt. Organizers can ship it to you, but you are responsible for shipping costs.
Nash is the son of Tyler and Ali Hall of Barlow. He is currently 18 months old. He was born with a CHT and where he can have surgeries, there is no cure.
Nash’s mother went to her anatomy scan at 20 weeks to see if little Nash was a boy or girl. The scan took a super long time. His parents had an appointment with their Obstetrician afterwards, and he told them there was something very wrong with Nash’s heart. The doctor sent her to a doctor specializing in high risk pregnancies and it was confirmed the baby had hypoplastic right heart syndrome. They also found out that he had tricuspid atresia, ventricular septal defect, transposition of the great arteries, and hypo aortic arch.
“I had him in Louisville at Kosair Hospital,” Nash’s mom told me. “He had his first open heart at 2 days old (56 hours old). He had his second open heart surgery at 5 months and 10 days old. They also found out he had pulmonary stenosis and bicuspid valve. So, in all he has seven defects. We are awaiting his Fontan surgery which will take place within the next two years.”
The Fontan procedure is used in pediatric patients who possess only a single functional ventricle, either due to lack of a heart valve, an abnormality of the pumping ability of the heart, or a complex congenital heart disease where a bi-ventricular repair is impossible or inadvisable.
Congenital Heart Defects
Tymeless Hearts is a nonprofit that helps families born with the most common birth defect, congenital heart defects (CHD). They provide emotional and financial support to families of children affected by CHD.
They help families as much as we can with anything from care packages and Christmas/birthday gifts, to bills, etc. For more information, visit tymelesshearts.org.